My son has Asperger’s. We have known this for almost three years now. It has been a challenge for us, some days more than others.
I don’t have Asperger’s but I sometimes can understand why he feels the way he does. Why he gets so frustrated. I get it. Not 100% and not to the degree that he does but I can understand a little bit.
I get why he gets so frustrated when things don’t go the way he thought they were going to go. It is almost as if he wakes up every morning with a list of what is going to happen that day. And if things don’t happen the way he wants them to, he has a very hard time. Some days he wakes up not wanting to go to school. So then getting to school is a problem. It wasn’t on his “list.” The older he gets the more he will understand that there are certain things he has to do each day and school is one of them. We have already seen some improvement with that but still have a long way to go.
When it comes to food, he only likes certain foods. More than just one or two which I am thankful for but still, it can be frustrating sometimes. Like tacos. He loves tacos we make from home but try to offer him a taco from a restaurant and forget it. He has serious hate for Taco Bell too, which happens to be his brother’s favorite place to eat.
He has a few snacks he likes and wants to have each day. Apples, tortilla chips, milk and yogurt if we have it. He might eat crackers or goldfish but it depends. Carrots he will eat with dinner but never ever as a snack.
He can’t stand certain things and sometimes it seems quite random to me. But I am sure he has his reasons, even if we don’t understand them.
It’s hard for me as a mom sometimes. The other day he was having a lot of trouble with getting to school and I just broke down about it. Why doesn’t he get he goes to school each day? Why? It could be something as little as his brother asking him the wrong question. We can talk about it and sometimes he will tell me. That helps but it is still hard.
Sometimes I catch myself thinking about how different things would be if he didn’t have Asperger’s. Then I feel bad because he is who he is because he has Asperger’s. He would be a different kid if he didn’t have it.
At the end of the day I know that he will be okay. He will figure out school and will eventually learn how to act right even if it is hard for him. He will start to figure out the world. But even so he will still struggle. He might always hate non homemade tacos and my never be able to get over it when someone says certain things. But hopefully he will be able to learn how to act and be able to handle it better than he does today.
Some days I just need to tell Asperger’s to shove it. To yell at it and tell it that it is making my little boy’s life really hard. But that won’t do anything but make me feel a little better. Because Asperger’s will always be with him and we will also be there to help him through it. The best way that we can.
Last Updated on March 3, 2015 by Julie Provost